Tag Archives: cancer

Monday Musings: The Things We Care About, a #HoldOntoTheLight Post

#HoldOnToTheLight

I honestly don’t know where this post is going, and so please bear with me as I work through my tangled thoughts.

I am struck today — as I ponder a life that is both fraught and wonderful, complicated and strikingly simple, weighted with deep worries and buoyed by simple yet profound pleasures — by the oddity of the things we choose to care about minute to minute, day to day, year to year.

As many of you know, last year our daughter was diagnosed with cancer. Her initial treatments went well, her maintenance regimen has been harder to pin down and she recently had a small setback — minor, but with cancer nothing is truly minor.

I suffer from anxiety anyway, and so any change for the worse in her situation can send me into a tailspin. The truth is, lots of things, big and small, can send me into a tailspin, but I am hardly unique in that regard. And when it comes right down to it, I am not convinced my anxiety explains the emotional phenomena with which I’m grappling in today’s post.

Perhaps an example will help me clarify my topic and allow you to follow along as I muse and ponder. I find — and this is nothing new — that one moment I can be focused on my daughter’s health, or something else of equal importance and solemnity, and the next I can be completely put out by my inability to solve the day’s Wordle puzzle in four guesses instead of five. A frivolous, even absurd, example to be sure, but I offer it in all seriousness. The frivolity is kind of the point.

This has been a difficult couple of years to say the least. I often begin my morning walks mired in dark thoughts, consumed with worry about my kid, or the state of the world, or, for a long time, the persistence of the pandemic. And then I will spot a hawk along the trail, or a warbler will pop up and start to sing in plain view, and I will be filled with happiness. Fleeting perhaps, but not any less powerful for its brevity.

We can be resilient creatures, we humans. And I do think some of what I’m writing about is resilience. Part of it might be as well the simple reality that our emotions demand respite. It can be exhausting living with worry or with grief. Many of us, myself included, live with anxiety or depression or other mental health issues, and these conditions can compound that weariness. Many of us struggle to find those moments of pleasure, those glimpses of resilience.

But the fact is, our minds — or at least my mind — seem to seek out breaks from the toughest issues. How else can I explain being consumed with the threat of global climate change one moment, and truly caring who wins the Tottenham v. Manchester City soccer match the next? How can I worry about my children, or the health of my in-laws, and also care whether I solve the puzzle on my phone in the allotted sixty seconds?

Do our minds do this to preserve our sanity? Ophthalmologists tell us that we can ease strain on our eyes when sitting in front of our computers by taking a few minutes periodically to focus on something farther away. Isn’t that what our brains do, too?

Okay, so I’m nearly six hundred words in to this post, and I still haven’t figured out what the hell I want to say. I suppose I am trying to explain to myself how my own coping mechanisms work. I know that for me, constant worry is debilitating. The intrusions of the frivolous save me from myself. I care about Wordle not because it matters, but because in making it matter, I force myself to look elsewhere, to focus on something other than the hard stuff right in front of me. I allow myself the pleasure of a bird sighting — or a song well played on my guitar, or a successful photograph — because without such pleasures my world would be a bleaker place.

I suppose I am merely describing distractions, which all of us have. And perhaps what I’m actually doing, in public, and in a roundabout way, is giving myself permission to be distracted. Because, I have to admit, in the depths of my legitimate worries, I am embarrassed by the trivial things I care about. Resilience. Distraction. Fun. Pleasure. Joy. When we confront serious matters — including life and death matters — these things can feel wrong, like violations of self-imposed gravity. How dare I take pleasure in a new music CD when my kid is dealing with cancer. How dare I care about a soccer match, or a Wordle puzzle, when the world is in crisis.

The thing is, though, without all those pursuits that delight and distract and bring joy, why does anything else matter? We help no one when we deny ourselves simple pleasures. Because they not only are born of resilience, they also promote it. And without resilience we are of no use to the people who need us, to a world that demands our attention and our compassion.

Perhaps this post is one long rationalization, a way to convince myself it’s okay for me to have fun now and then. But I think it’s more. In the depths of difficult times, I believe we need to remind ourselves to take joy when and where we can. Life is hard. We face no shortage of excuses to be sad or frightened or angry. Our humanity demands we also create opportunities to find happiness and peace, even if just for a short while.

Wishing you wonderful week.

 

Professional Wednesday: Throw Nothing Away — A Writing Lesson Courtesy of INVASIVES

INVASIVES, by David B. Coe (Jacket art courtesy of Belle Books)February has begun, Punxsutawney Phil has done his schtick, and time seems to be moving at breakneck speed. In a little over two weeks, Invasives, the second Radiants book, will be released by Belle Books.

Like Radiants, this is a supernatural thriller. This time, though, I have set my thriller in New York City, and a good deal of the story takes place in the New York subway tunnels. My lead characters are a trio of homeless, runaway teens — Mako, Bat, and, my main protagonist, Drowse. They live off what they can make by scrounging and, yes, stealing, and they take shelter in a house built of cardboard and shower curtains, tape and rope and plastic ties.

Bat is blind. He comes from money, but had to leave his home. When the book opens, we don’t know why.

Mako was involved in gang activity for a time, but eventually went straight. Or tried. Did I mention they have to steal?

Drowse ran away from a terrible home situation. She turned tricks for a time. Ran drug money. Now she’s trying to hold their small “family” together and survive in the Below. And, as it happens, she’s a Radiant, whose power is invaluable to their business.

But her abilities, and the business they do, have now attracted the notice of some of the most powerful people in New York’s financial world. They want something Drowse has, and they are willing to do anything, kill anyone, to get it.

Intrigued? I hope so. I love, love, love this book. Yes, I know, I say that about all my books when they come out. Because it’s true.

Invasives, though, is special to me in a couple of ways.

First, this is the book I was writing when we first got my daughter’s cancer diagnosis last March. At first, I put my writing on hold. I could barely function. I could barely think. How the hell was I supposed to write a novel? Well, as it turned out, writing this book was just what I needed. It is a fraught narrative, filled with suspense and tension. It focuses on these three characters, on their love for one another, on their bonds, and the forces trying to tear them apart. It wasn’t about cancer at all, and that was a good thing. But the story gave me an outlet for all the emotions churning inside me. As I have said before, I could not have gotten through the ordeal of last spring and summer without this novel.

And second, Drowse, Mako, and Bat were with me, lurking in my imagination, for more than a decade before I finally started work on this book. I had the idea for them, for their circumstances and relationships, long before I knew what story to build around them. I knew only that I loved the characters, and their dynamic. I had one idea for a novel, but I could never quite figure out the storyline, the world, the ending. I did write a kick-ass opening chapter for it, though.

Then, two years ago, I began writing the first Radiants book, and as I thought about subsequent volumes, Drowse and her friends popped back into my head. This was their story. Finally. This was the perfect world in which to place them. I even was able to use an updated version of that opening chapter.

I have said before, half in earnest, half in jest, that writers are packrats. We keep everything. Or at least we should. When I figured out that Drowse et al. would be the perfect protagonists for my second Radiants book, I knew just where to find the original character sketches, the original opening chapter, the original storyline for their caper. Because even that wound up factoring in to the creation of Invasives.

I never lost faith in the groundwork I did for their story all those years ago. I knew there was a novel there, somewhere. It was just a matter of placing it.

That happens to me a lot, and I know it happens to other authors as well. Sometimes we have an idea, and we are ready immediately to write and publish it. Other times, stories and characters take a while to steep, like good, strong tea. For ten years, Drowse, Mako, and Bat waited in a file on my computer desktop. It wasn’t that the original idea was bad or lacking in some way. It just wasn’t ready. Or rather, I wasn’t yet ready to write it in a way that did justice to the power of the original notion.

And that made the final realization of their tale in this novel all the more satisfying.

Keep writing. And don’t throw any idea away!

Monday Musings: Uncertainty, Optimism, and the New Year

I have been sitting in front of this screen for the better part of an hour, trying to write something for my opening Monday post of 2022. I am in no mood for prognosticating. With Covid still raging, and forty million Americans still stubbornly refusing to be vaccinated and bizarrely resistant to wearing masks, this doesn’t seem a time to be confident about anything, near-term or long-term.

I have no interest in reviewing the year just past. Any discussion of current political trends is likely to be irrelevant a month from now (and depressing for me and my like-minded friends in the interim . . .).

I also don’t wish to write about something frivolous (I have been enjoying this week’s Premier League soccer broadcasts and considered — briefly — writing about that).

I have written far too often about my personal struggles of the past year, and don’t wish to revisit them once again.

And, I realize as I write that last, I am reluctant to delve too much into my current emotional state. Because the truth is, I feel pretty good right now. Better than I have for much of the past year.

This will sound odd, but optimism scares me.

I come by my pessimism naturally. My mother could be terribly superstitious, and often didn’t like to give voice to her hope for good things, at least not without knocking on wood or something of the sort. I can be the same way. And on occasion in the past, when I’ve allowed myself to think positively, I’ve had bitter disappointments. None more devastating than this past year, when I dared feel some optimism in the winter, with The Former Guy having left office and the harsh winter Covid wave seemingly on the wane. Then our daughter was diagnosed with cancer.

And so saying I feel good right now scares me a little. The truth is, we don’t know what will happen with our daughter’s illness. Things look good right now, but with a disease like this, there are never guarantees. We as a nation don’t know what will happen with the pandemic. Things look dire right now, but if we can weather this wave, which seems likely to peak late this month, who knows? We also don’t know what will come of the anti-democratic rumblings and activities of the far right. I fear the worst, but hold out some hope that our system of government, which has seen so many crises over the past two hundred and forty years, will prove resilient.

Life’s uncertainty is a source of both wonder and terror for all of us. Good things come out of the blue, sometimes changing the course of our personal or professional existence. Disappointment and tragedy do the same. The hardest part of my emotional health journey over the past year has been coming to terms with that uncertainty and embracing it. Because we can’t know what will happen. Over the years, I’ve written so many characters in so many different stories in so many fantasy worlds, who have the power to glimpse the future, to judge people’s fates, or to see their own. Call it Divination, or The Sight, or Scrying — the power is a common trope in the realm of speculative fiction.

It is a power I am not sure I would want. I know, I just said that dealing with uncertainty has been difficult for me. But I also think knowing our future would rob us of something essentially human. Because while I have never been good at being optimistic, it is something I strive to be. I believe hope is the most human of emotions. Take away uncertainty, and we take away hope as well.

I will admit that my view on this isn’t entirely consistent. Would I like to know for certain, right now, that my daughter will forever be just fine? Of course. Would I want to know the opposite? No way in hell.

Embracing uncertainty means more than merely accepting what we can’t know. It means refusing to game out scenarios in our minds (something I do far too often, to my own detriment), resisting the tendency to give in to our worst fears, or to build up too much expectation for unrealistically rosy outcomes.

And so as I stand at the leading edge of this new year, I find myself unwilling to make predictions, or even to spell out with too much specificity what I want to see happen and what I don’t. Life comes at us fast, and the older I get, the harder it becomes to slow down the days, the seasons, the years.

But for the first time in my life, I am content to begin the new year saying to myself and to the world, I don’t know. I don’t know what will happen to us personally, professionally, politically, socially, culturally. I. Don’t. Know. And that’s okay. Today, I feel good. I’ll let you know about tomorrow when it gets here.

Have a good week. Have a good year.

Professional Wednesday: Work as Balm

Continuing this week’s theme of maintaining mental health through difficult times . . .

Back in March, when our daughter’s cancer was diagnosed, my first impulse was to put everything on pause. I contacted my editor and agent to let them know I was not going to be working for a while. I announced on my various social media platforms that I would be pulling back from them as well. I don’t know what I thought I would be busy with. I don’t know what I thought I would do to fill my days. But in that instant, I couldn’t imagine doing . . . anything.

I can’t say for certain if this was a good decision or a bad one. I did what I needed to do in that moment. I made time for myself to deal with something utterly devastating and unprecedented in my life, for the very reason I stated above. I didn’t know what I could do and what I couldn’t. And, being self-employed, I have the luxury of being able to clear my schedule when I need to.

I’ll pause here to say this is why paid family leave should be universal across the country. People deal with crises of this sort every day. The privileged few — people like me — shouldn’t be the only ones who can take the time to care for themselves and their loved ones in this way.

Of course, Nancy had work, and though her colleagues and boss would have understood had she taken time off, the truth is the nature of her position at the university, and the fact that the school was in the middle of implementing the Covid response she helped formulate, made this impossible. And so, perhaps not so surprisingly, after taking only a few days to be shellshocked and emotionally paralyzed, I got back to work as well.

RADIANTS, by David B. Coe (Jacket art by Belle Books)I was in the middle of writing a book — Invasives, the sequel to Radiants — and I dove back in. It’s a book about family, as so many of my novels are, and about discovering powers within. It doesn’t take much imagination to understand why I would find that particular story line comforting.

At the time, I wasn’t very far along in the book — maybe one-third of the way in. But with my reality frightening and sad, I threw myself into the story. Work became the place I went to escape my dread, my grief, my rage at the injustice of my kid’s illness. The emotions came with me, of course, but I was able to channel them into my characters, to turn them into narrative. That is the magic of creation, the alchemy that allows us to convert anguish into art. Each day, I couldn’t wait to get back to my book; I can’t remember a time when work has meant more to me. My haven, my outlet, my balm.

I finished the book in less than two months, which is pretty quick for me, and I knew immediately that I had written something special. I love all my books. Someone asked me just the other day what my favorite book is among those I’ve written, and I answered as I always do: the newest one. But in this case, it was especially true. Invasives is laden with emotional power and it is, to my mind, one of the best plotted books I’ve written. Often when I write, I have to fight off distractions. Not this time. With Invasives, writing was the distraction.

I was sad to finish the book — which was definitely new for me. Usually I celebrate finishing a novel. This time, I wondered how I would cope without the book to write. My child was still sick, still dealing with treatments and such. And I was still scared, still sad.

"The Adams Gambit," by D. B. Jackson (Jacket art by Chris McGrath)And so around that time, unsure of what to write next, I acted on an idea I’d had for several years. I hung out my virtual shingle as a freelance editor. Work came in quickly, and before I knew it I was editing a series for one friend, and talking to others about future editing projects. I also released the Thieftaker novellas. And prepared for the October release of Radiants. And started gearing up for the Kickstarter for Noir, the anthology I’m co-editing for Zombies Need Brains. And wrote a story for another anthology.

In other words, I worked the way I normally would. Yes, some days were harder than others. Some days I got nothing done at all. And part of working through this ordeal has been giving myself permission to have days where I do nothing more than spin my wheels. But more often than not, work has continued to offer me solace.

I’ve watched in awe as Nancy, who has even more on her plate than I do (elder care issues involving her parents and a job that is emotionally and mentally exhausting), has found the strength and discipline to be a loving, supportive mom, an attentive daughter, a skilled and focused professional, as well as a loving partner. She, too, has found refuge in her job.

Looking back, I feel a little foolish for having retreated from my professional life the way I did those first days after learning of my daughter’s diagnosis. From this vantage point, it appears rash, unnecessary. I feared that in some way my job would keep me from giving my full attention to my daughter’s health. I was right. The mistake I made was in thinking that would be a bad thing. Believe me, I spent a ton of time thinking about her, worrying about her, searching for ways I might ease her burden. But I couldn’t do that for every hour of every day, not without doing real damage to my own emotional and physical health.

Work saved me.

Now, I know each of us deals in unique ways with anxiety, fear, grief, and other emotions, and so I offer this post not as a prescription for others, but simply as a description of my experience. I hope that some of you find it helpful.

Monday Musings: My Decision to Start Therapy — A #HoldOnToTheLight Post

#HoldOnToTheLightShortly after I graduated from college, back in Medieval times, I corresponded with a dear college friend, one who continues to this day to be a close friend. At the time, she was dealing with some emotional issues and had started therapy. “Counseling is the best thing in the world,” she wrote to me. “If everyone was in counseling with a good counselor there would be world peace.”

I wrote down the quote at the time, and have returned to it many times in the intervening years, sometimes with amusement (it’s just a great statement) and at other times with the sense that I ought to take to heart the lesson of her words.

Only this year, with the cancer diagnosis given to my older child, did I finally act on her wise advice and start therapy.

When I was young, being in therapy carried a stigma. Mental health and mental illness were even less well understood than they are now. Seeking a counselor was an admission of “weakness,” of being unable to hack it on one’s own. I grew up in New York, a bastion of liberal thought and cutting edge cultural trends, and was raised in an educated, privileged family. And still, I grew up with this bias ingrained in me. People like me didn’t need therapy, because we were “strong” and “normal” and “healthy,” whatever the hell those words meant.

It took me a long, long time to overcome that element of my upbringing. Which is really too bad, because I now know that I have suffered from anxiety and panic disorder my entire life. I denied this reality for years. I was “high strung.” “Type A.” I was “a worrier.” Given time, I could probably come up with a dozen other euphemisms that I used, or that others used on my behalf, to help me deny the obvious. Because “high strung” was okay. Suffering from anxiety suggested something deeper, more serious, more systemic. It implied that I wasn’t “well.”

Guess what. I wasn’t well.

Back in 2017 and 2018, after my brother died, I went through a really dark period. I was grieving, grappling with all sorts of difficult, nearly crippling emotional issues. At the time, it was the most troubling period of my emotional life. Still I made excuses, explaining away my decision not to seek therapy. Our younger daughter was just starting college and we couldn’t afford the added expense. It was natural for me to be having a hard time — I was in mourning. I could handle the problems on my own.

It was a terrible decision, and I shudder to think of what might have happened had I not fallen back on the next best thing to seeking the help of a counselor. I wrote about my brother. Not just a journal entry (although I should add here that regular journaling has also become a key part of my mental health regimen). I had conversations with people from his life and delved deeply into family history and the papers he’d left behind. The piece I wrote about him is one of the best things I’ve ever done. Few have read it, and for now that’s fine with me. The process itself was the point. It saved me from myself — my stubbornness, my denial, the lingering effects of my upbringing.

With my daughter’s cancer diagnosis earlier this year, which came on the heels of a period of deep anxiety during the fall of 2020, I realized the obvious: I needed help. More, I was  for help. I couldn’t do this on my own anymore, nor did I see the need to.

Starting therapy was revelatory. I was fortunate, in that I found on my first try a counselor who understands me, who knows when to challenge my assumptions and when to let me ramble and find for myself a helpful emotional path. Early on, as we talked about an episode in my life that had been particularly formative and painful, she said something that spoke powerfully to my experience, not only with her, but also with the piece I’d written about my brother.

“When you talk about something painful like this,” she said — and I believe she could also have said, when you write about this sort of thing — “you assert control over it. You’re no longer subject to it. Rather, it answers to you.”

Yes. A thousand times, yes.

This was why writing about my brother and his death proved so therapeutic. This was why my sessions with my therapist have been so positive and helpful. This was why my beloved old friend could see universal therapy leading to world peace. When we acknowledge the things that afflict us, when we accept them and speak to them and come to understand them, they cease to be our enemy. They don’t vanish, at least not immediately. But by embracing them, by asserting control over them and making them ours, rather than us being theirs, we rob them of their power.

This, at least, has been my experience. And all those arguments against therapy, which I used to delay what I never should have put off? I reject them now. The stigma? Fortunately, society has progressed beyond this, and I have been dragged kicking and screaming into the 21st century. The money? Many health insurance policies cover mental health, making it as affordable as most common prescription drugs. The time commitment? I take time every day to exercise, because I know that doing so is good for me. Why would I begrudge an hour each week to do something equally healthful?

And so I stand before you (albeit virtually) as an unabashed booster of therapy. I waited until I was in the midst of a family crisis, and I wish I hadn’t. If I’d had the wherewithal as a much younger man to seek professional help, I might have recognized my anxiety for what it was in my twenties or thirties rather than in my fifties. I could have saved myself so much torment, so much sadness and angst. I choose not to consider this for too long. Water under the bridge as the cliché goes.

But I will say this: If you’re suffering, if you feel that you need help, but have been reluctant, for whatever reason, to seek it out, please take the plunge. I believe you’ll be glad you did. You may find peace, healing, and tools for coping that have eluded you up until now. And, as my friend suggests, you might even move us one step closer to world peace.

Update: What’s Been Going On In My Life

In August, after a long retreat from social media and a series of appearance cancellations, I shared with all in a post on his blog that our older daughter, Alex, has cancer. You can read that post here.

Now, several months later, I wanted to offer an update to that original post, and to share some positive news.

Alex is still undergoing treatments, but her doctors have transitioned her from chemotherapy, which in her case was VERY effective, to what they call a maintenance regimen. Essentially this means that the cancer has been knocked back by the chemo. In many places where she had malignancies, it’s impossible to tell she ever had cancer. In other spots, the cancer remains but is greatly diminished.

The maintenance regimen is intended to keep the cancer in its present, reduced state. It prevents new or renewed cancerous growth without inflicting the kind of side-effects Alex suffered through while on the chemotherapy. Put another way, her doctors are now treating her cancer as a chronic condition, one that can be managed without an invasive and devastating surgery, and without further use of drugs that sap her of energy, make her feel rotten, and cause her hair to fall out.

The sobering news is that, at least for now, they do not know if her cancer is fully curable. It may be that they cannot say “her cancer is gone and it’s not coming back.” This remains to be seen. The reassuring and offsetting news is that they can keep her on the maintenance regimen indefinitely, for the rest of her natural life if they need to. Because Alex responded so well to the first chemotherapy “cocktail” they tried, her doctors have plenty of other treatments they can use on the off-chance that the cancer reasserts itself. And research on exact DNA mutation that caused Alex’s cancer may, before long, yield even more effective, and possibly curative, treatments.

And so it seems she is on a good trajectory, if not yet cured.

I have to admit that adjusting to this outcome has taken me some time. I have lost my mother, my father, and my oldest brother to cancer. I am a gold-circle member of the “Fuck Cancer” club. More, I am shaped by a 20th century view of cancer as a binary phenomenon. One has cancer or one doesn’t; one beats cancer or one dies from it. That has long been my understanding.

But 21st century oncology is not always like that. For some patients with some forms of the disease — including Alex and hers — cancer is something that can be lived with, controlled, kept in check.

From the start, I have wanted nothing more than to be able to announce to the world that Alex is cancer-free. For now, that is more than I can say. But short of that, this is as good an outcome as I could have hoped for or imagined. We will worry each time Alex has a new set of scans to assess the state of her disease, but that was going to be true under any scenario. What matters is that she feels fine, the symptoms associated with her cancer have gone away, she is otherwise healthy and happy, she is working, seeing friends, having fun, living her life, looking forward to the return of her gorgeous hair, which has been an identity marker for her all her life. And the rest of us — Nancy, our wonderful younger daughter, Erin, and I — are breathing easier and recovering ourselves from the emotional ordeal of the past eight months.

I want to thank all of you for your support and friendship during this period. Every expression of concern, every word of sympathy and encouragement, every act of kindness has meant more to me than I can convey.

I look forward to returning to a more normal routine. I intend to be more of a presence online. I plan to attend more conventions in the coming year. Having re-started the newsletter, I will continue to publish it monthly, with the usual giveaways and previews of upcoming releases. (You can sign up for it here!)

Again my thanks to all of you. It’s good to be back.

What’s Been Going On In My Life

As some of you may remember, back in March I pulled away for a time from all social media. And, as you may have noticed, even now my social media presence remains limited. I haven’t been blogging regularly. I haven’t been sending out my newsletter. I have been far less “chatty” than usual. And there is a reason for all of this.

In March, our older daughter was diagnosed with cancer.

The months since have been the longest and most difficult of my life, and our ordeal is far from over. She is undergoing treatment and has responded well so far. Her spirits are good — remarkably so. She is, as I already knew, one of the bravest, wisest, strongest, most positive people I’ve ever encountered. Even in this most difficult time, I am so very proud of her. And I know that her attitude has been and will continue to be a most potent weapon in her battle. That said, though, the cancer had progressed significantly before it was discovered and she still has a long road ahead of her. We are hopeful in the long-term — we believe we have every reason to be — but again, this is hard.

We are grappling with fear, uncertainty, the sadness that comes with knowing our child — yes, our adult child, but nevertheless — is suffering and there’s not a damn thing we can do about it. We are grieving for all we’ve lost as a family. Not because we doubt that she’ll recover. But because, even after she is cancer-free, we will, all of us, live for the rest of our lives fearing a return of the illness. We as a family — not just Alex, not just Nancy and me, but also Erin, our beloved younger daughter — have lost our innocence in a way. We’ll never be the same.

There was a time, early on, when I was exchanging texts with my brother about one development or another, and I wrote something about “Alex’s oncologist.” And I had to pause to say to myself and to him, “Fuck, my daughter has an oncologist.” The past several months have been filled with moments like these. Times when I catch myself saying things no parent ever wants to say and thinking of things I never in my darkest dreams thought I would have to consider.

At times, work has been a balm, and I have been able to lose myself in my writing or the freelance editing I’ve been doing recently. At times, I can’t do anything at all. I have started therapy, which has been wonderful for me. I have continued to exercise and eat well. I have managed not to drink myself into oblivion even once, though I will admit to being tempted on more than one occasion. I sleep moderately well, but often wake up feeling utterly devastated and sick to my stomach. Nancy and I still manage to have fun when we can. We also take turns comforting each other. One day one of us will be okay and the other will be a wreck. The next day we’ve reversed roles.

Mostly, though, we move through life and work and quiet time feeling like we’re wearing those leaded bibs they use at the dentist’s office when you’re getting x-rays. Everything is weighed down. Everything is harder, more wearying. Our tempers are a bit more frayed. Even our best days are only so-so, and our worst days are bleak and seemingly endless.

Before now, I hadn’t wanted to make this sort of public pronouncement. I’m not entirely sure why. Alex has been very open about being sick and has made it clear to the rest of us that she doesn’t consider her illness a secret to be guarded. Maybe I feared “announcing” it would make it feel more real. Though honestly, I don’t know how it could be any more real. Maybe I just wanted to put off the exchanges of messages and comments that will inevitably follow a post like this one. Maybe I wanted to avoid the tears I’ve shed while writing this.

Whatever the reason, I felt that with everything else I’ve pulled back from this year, my cancellation of my appearance at DragonCon warranted an explanation. The fact is, even with all the precautions the convention has taken — and the con committee has been terrific in this regard — I fear exposing myself to the Delta Variant of Covid-19 in advance of a visit with our immunocompromised daughter. I am sorry to miss the convention. I am sorry to disappoint those of you who looked forward to seeing me there. I hope and plan to attend in 2022, when this latest surge in the pandemic is a distant memory, and our daughter is on the mend.

Many of you, I am sure, will want to help in some way. The fact is, there is not much anyone can do right now. I welcome and am grateful for your expressions of support and friendship. I would, however, ask two things of you: 1) Please respect our privacy. I have shared what’s going on with our family. I have no intention of filling in additional details. And 2) Please do not share your cancer stories with me. I know they are kindly meant, and I thank you for your good intentions. I also know they will do nothing to help me, and will in fact increase my anxiety.

Otherwise, I ask only that you spare a positive thought for my daughter, my family, and me.

Thank you so much for reading this. Take care of yourselves. Be kind to one another. Hug the people you love.